During the conference, all children with Down Syndrome under the age of 21 (and interested siblings) attend a carnival with a personal Princeton University student volunteer. The carnival hosts a variety of activities including a scavenger hunt, sports, interactive stories and games, and other stations run by Princeton student groups. Volunteer to child ratios are usually one-to-one. All volunteers are trained and receive individual information on their specific child. There is also a nursery for all children under the age of 2.

While the children are attending the carnival, their parents are invited to hear speakers who are experts in different aspects of Down Syndrome. This year, some of the topics to be discussed include: teachers using inclusion strategies, technology, social opportunities for children with Down Syndrome, and Early Intervention. In addition, there will be an exhibit hall with various organizations that provide resources and support for families of children with Down Syndrome. Suggestions for speakers and exhibitors are more than welcome!

Complimentary brunch is provided for all attendees.

What: Princeton Down Syndrome Conference and Carnival
When: November 18th, 2010
Where:Princeton University Campus

Time:11:30am-5:30pm

Please sign up at this link: http://littleurl.info/pda2012

There is a registration fee of $25 for everyone over the age of 10. Please mail all checks to:
Mengyi Xu
5457 Frist Campus Center
Princeton University
Princeton, NJ 08544

If you have any questions, comments, please e-mail pda@princeton.edu

Best,

Meagan Downey, President and the PDA Executive Board

Do you or someone you know have a family member with an intellectual or developmental disability?

Do you need family support services, but don’t know how to get them?

Help us help you…come get the information you are looking for from the service providers of the Monmouth and Ocean county area.
Place: Barnegat Recreation Center
900 West Bay Avenue
Barnegat, NJ 08005
Date: October 11, 2011
Time: 7:00 p.m.

Meet with different service systems that can make a difference in your future, or the future of a family member.
Help us help you, and let your voice be heard!
Regional Family Support Planning Council #6 (Monmouth and Ocean Counties) is a group of volunteer family members of people with developmental disabilities or individuals with developmental disabilities, that host public forums to obtain input to improve family support provided by the Division of Developmental Disabilities
For additional information call 1-800-216-1199 option 2

CLICK HERE FOR FLYER WITH INFORMATION

Down Syndrome Awareness Day
at the Philadelphia Zoo
Sunday, September 16, 2012

Will share more details as I get them.

For children aged 7-17 years “Genetic Influences on learning and behavior in individuals with Down syndrome”. The study will involve 90-120 minutes of testing in one or two visits. Most tests will be done on a computer. A small blood sample will be taken and parents will complete two short questionnaires on medical history and behavior. Contact Kay Taylor at taylork@kennedykrieger.org 443-923-9143.

For children aged 10-17. Study will test the drug rivastigmine to see if it will help improve memory, speech and language function. This is a double blind study which means that some people will get the drug and some will not…but you will not know which group you are in. Four 2 to 6 hour visits to Baltimore will be required over 24 weeks. Contact Cathleen Weadon at weadon@kennedykrieger.org 443-923-9140.

For individuals with Down syndrome aged 18-30. This study (BP25543) will look at a drug that is being developed to improve attention and memory. Individuals will take a drug during the 16 weeks of the study, and come to the clinic for tests and keep a journal of side effects, etc. Contact Carrie Blout for info 410-502-7535.

Do you or someone you know have a family member with an intellectual or developmental disability?

Do you need family support services, but don’t know how to get them?

Help us help you…come get the information you are looking for from the service providers of the Monmouth and Ocean county area.

Guest Presenter: Dr. Dawn Apgar, Deputy Commissioner, Department of Human Services, Acting Assistant Commissioner, Division of Developmental Disabilities
Place: Children’s Center of Monmouth County
1115 Green Grove Road
Neptune, NJ 07753
Date: Thursday – March 8, 2012
Time: 7:00 p.m.

CLICK TO VIEW FLYER WITH MORE INFORMATION

Dear Friends,

Please urge Sequenom to meet all NDSS criteria for prenatal test companies. To see the NDSS Criteria to Evaluate Companies with Non-Invasive Prenatal Diagnostic Tests for Down Syndrome click here.

Click here to download the customizable letter and email it to info@scmmlab.com.

Best, NDSS

Early intervention funding is in danger of being frozen by Congress.

CLICK HERE to send a message to your Congressman through the Easter Seals site.

(https://secure2.convio.net/es/site/Advocacy?cmd=display&page=UserAction&id=443)