I received this in an email.
Calling all Teens with Down syndrome!!
If you are a teen with Down syndrome, please consider joining our Down Syndrome Growing Up Study. The growth charts for individuals with Down syndrome have not been revised in a long time and your participation will help us to accurately update them.
Please visit the Down Syndrome Growing Up Study Website:
Stand Up and Be Counted!
Here is information from the Kennedy Krieger Institute in Baltimore regarding 3 research studies for people with Down syndrome:
For children aged 7-17 years “Genetic Influences on learning and behavior in individuals with Down syndrome”. The study will involve 90-120 minutes of testing in one or two visits. Most tests will be done on a computer. A small blood sample will be taken and parents will complete two short questionnaires on medical history and behavior. Contact Kay Taylor at email@example.com 443-923-9143.
For children aged 10-17. Study will test the drug rivastigmine to see if it will help improve memory, speech and language function. This is a double blind study which means that some people will get the drug and some will not…but you will not know which group you are in. Four 2 to 6 hour visits to Baltimore will be required over 24 weeks. Contact Cathleen Weadon at firstname.lastname@example.org 443-923-9140.
For individuals with Down syndrome aged 18-30. This study (BP25543) will look at a drug that is being developed to improve attention and memory. Individuals will take a drug during the 16 weeks of the study, and come to the clinic for tests and keep a journal of side effects, etc. Contact Carrie Blout for info 410-502-7535.